From lived experience to PhD: UWTSD graduate aims to improve support for parent carers

A parent carer whose personal experiences inspired a passion for social justice is celebrating graduating from the University of Wales Trinity Saint David (UWTSD) with a Master’s degree.

Emma-Louise Johnson, who is now preparing to continue her research through a PhD, has completed an MA in Equity and Diversity in Society after studying online through UWTSD’s Carmarthen campus, balancing postgraduate study with caring for her two sons, who both have significant additional needs.

Emma-Louise’s journey to postgraduate study began with a career in communications, following a First-Class degree in English Literature and Language and a postgraduate Diploma in Journalism.

However, it was her family’s experiences that ultimately changed the direction of her career.

“My children both have significant additional needs, and the challenges I faced when trying to access support led me to train as an Independent Advocate,” she said.

“I soon realised that the issues parent carers face are widespread. That inspired me to look for a course where I could develop the knowledge and research skills to help bring about systemic change.”

Studying by distance learning gave Emma-Louise the flexibility she needed to balance university with family life.

“Being able to study online was invaluable. As a parent carer, participation in many areas of life can be difficult, so being able to complete this course while continuing my caring responsibilities has been incredibly rewarding.”

She chose UWTSD because of its focus on social justice and its recognition of advocacy as an important area of study.

“I wanted a course that allowed me to focus on social justice and one that recognised the value of advocacy. That made this programme the perfect fit.”

One of the highlights of the course was the sense of community Emma-Louise found despite studying remotely.

“The cohort was incredibly friendly, and I made a close friend, Krystina, during the programme. I also joined the Philosophy Café, where I met more people who have inspired my creative writing, something I continue alongside my academic studies.”

Although balancing postgraduate study with family life was challenging, Emma-Louise says she couldn’t have completed the degree without the support of those around her.

“Managing my studies while parenting two children was undoubtedly the biggest challenge. Fortunately, my husband, David, has been incredibly supportive, and with his encouragement, alongside the support of the department, I was able to complete the course.”

Throughout the programme, Emma-Louise drew on her professional experience as an Independent Advocate for vulnerable adults and children, developing research skills that she hopes will make a meaningful difference to families in the future.

“The course has given me a comprehensive understanding of research frameworks and how research can be used to transform lives. It has strengthened my ambition to use evidence to influence policy and professional practice.”

Emma-Louise has now been accepted onto a PhD programme, where she will continue researching the experiences of parent carers and explore how research can shape policy and improve support for families.

“My ambition is to carry out in-depth research that helps improve the experiences of parent carers and contributes to shaping professional practice,” she said. “Beyond that, I’d love to write a book exploring the experiences of parent carers and, drawing on my background in the arts, develop creative ways of using art within research to amplify the voices of disadvantaged groups.”

Looking back on her studies, Emma-Louise believes the course has given her the skills and confidence to pursue meaningful change.

“I would absolutely recommend this course. It develops the critical research skills needed to bring about meaningful change in the areas you’re passionate about.”

Dr Jessica Pitman, Programme Manager for the MA Equity and Diversity in Society at UWTSD, praised Emma-Louise’s achievements and the impact of her research.

“Emma is an outstanding student whose work has been driven by a genuine commitment to improving the lives of parent carers. Her dissertation explored the experiences of parent carers advocating for their disabled children while navigating interactions with professionals and institutions, tackling an issue of real social importance.

“Her dissertation achieved one of the highest marks awarded on the programme this year, reflecting the exceptional quality of her research, critical analysis and academic writing.

“We’re delighted that Emma has been accepted onto a PhD, where she’ll have the opportunity to explore this important area in even greater depth. Her research has the potential to challenge existing perceptions, generate new knowledge and make a significant contribution to improving understanding of the barriers parent carers face when seeking support for their children.

“We look forward to continuing to support Emma on the next stage of her academic journey and seeing the positive impact her research will have on policy, practice and the lives of families.”

Emma hopes her journey encourages others who want to use education as a force for positive change.

“This course has shown me how research can make a real difference. I hope my work will help improve the experiences of parent carers and ensure their voices are heard.”

Further Information

Arwel Lloyd

Principal PR and Communications Officer    
Corporate Communications and PR    
Email:  arwel.lloyd@uwtsd.ac.uk    
Phone: 07384 467076